Leucovorin is a treatment for cerebral folate deficiency, not autism—but that distinction doesn't matter to RFK Jr., who is determined to eradicate autistic people while also letting his cronies make $$ selling leucovorin supplements. More in our newsletter by @emily.willingham.phd: https://buttondown.com/TPGA/archive/ [image: Animated graphic with a vertical red-to-purple horizontal gradient background. Block text at the top reads, "Leucovorin for autism is a grift, not a treatment" Bullet poin
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Leucovorin is a treatment for cerebral folate deficiency, not autism—but that distinction doesn't matter to RFK Jr., who is determined to eradicate autistic people while also letting his cronies make $$ selling leucovorin supplements. More in our newsletter by @emily.willingham.phd: https://buttondown.com/TPGA/archive/ [image: Animated graphic with a vertical red-to-purple horizontal gradient background. Block text at the top reads, "Leucovorin for autism is a grift, not a treatment" Bullet poin
23.5K views7 months ago
FacebookThinking Person's Guide to Autism
What Cerebral Folate Deficiency Means for Autism and Development #AutismHistory #Neurodiversity #MisunderstoodConditions #AutismAwareness #MentalHealthEducation #ForNeurodivergentCommunity | Dr. Mark Stengler, N.M.D.
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What Cerebral Folate Deficiency Means for Autism and Development #AutismHistory #Neurodiversity #MisunderstoodConditions #AutismAwareness #MentalHealthEducation #ForNeurodivergentCommunity | Dr. Mark Stengler, N.M.D.
163 views6 months ago
FacebookDr. Mark Stengler, N.M.D.
Cerebral folate deficiency: why it can look like autism and PANS/PANDAS In tomorrow’s episode with child neurologist Dr. Richard Frye, we discuss how brain-level folate issues can show up as sudden regression, new movement patterns (tics/dystonia), epilepsy, and other neurologic signs—overlapping with what we see in autism and PANS/PANDAS. If you’ve noticed abrupt changes or complex movement symptoms, this lens may help you ask sharper questions and consider next steps with your care team. New p
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Cerebral folate deficiency: why it can look like autism and PANS/PANDAS In tomorrow’s episode with child neurologist Dr. Richard Frye, we discuss how brain-level folate issues can show up as sudden regression, new movement patterns (tics/dystonia), epilepsy, and other neurologic signs—overlapping with what we see in autism and PANS/PANDAS. If you’ve noticed abrupt changes or complex movement symptoms, this lens may help you ask sharper questions and consider next steps with your care team. New p
12.8K views6 months ago
FacebookNancy O'Hara MD, MPH, FAAP
A cerebral folate deficiency is not autism, but has very similar/overlapping symptoms. If a child has this deficiency, was diagnosed with autism, took leucovorin and started speaking and being able to do more things would it be safe to say maybe that child was misdiagnosed autistic? Literally going down this rabbit hole of what ifs every time I see a parent say leucovorin was life changing for their child. #autism #Leucovorin #cerebralfolatedeficiency #parents | Oh-Maddy
2:50
A cerebral folate deficiency is not autism, but has very similar/overlapping symptoms. If a child has this deficiency, was diagnosed with autism, took leucovorin and started speaking and being able to do more things would it be safe to say maybe that child was misdiagnosed autistic? Literally going down this rabbit hole of what ifs every time I see a parent say leucovorin was life changing for their child. #autism #Leucovorin #cerebralfolatedeficiency #parents | Oh-Maddy
2.7K views7 months ago
FacebookOh-Maddy
US FDA approves leucovorin for rare genetic disorder causing autism-like symptoms
US FDA approves leucovorin for rare genetic disorder causing autism-like symptoms
1 month ago
marketscreener.com
💊 Heard about Folinic Acid (Leucovorin), FRAT testing, or cerebral folate deficiency— but still feel stuck? In this episode, Dr. Tony Ebel explains what many families might be missing: ➡️ Why these tests and treatments only go so far if the nervous system is still dysregulated ➡️ How the brain-gut connection truly works from the top down ➡️ And how restoring neurological regulation can unlock progress in speech, behavior, sleep, and feeding When you support the nervous system first, everything
1:25
💊 Heard about Folinic Acid (Leucovorin), FRAT testing, or cerebral folate deficiency— but still feel stuck? In this episode, Dr. Tony Ebel explains what many families might be missing: ➡️ Why these tests and treatments only go so far if the nervous system is still dysregulated ➡️ How the brain-gut connection truly works from the top down ➡️ And how restoring neurological regulation can unlock progress in speech, behavior, sleep, and feeding When you support the nervous system first, everything
943 views7 months ago
FacebookDr. Tony Ebel & The PX Docs Network
Pica is a common but concerning behavior in kids with autism, involving the persistent eating or chewing of non-food items like dirt, paper, hair, or even feces. While it might seem like just a phase, pica can lead to serious health risks such as bowel obstructions, toxicity, and infections. So why does pica happen? Here are some possible root causes: • Zinc deficiency: Over 50% of individuals with pica have low zinc levels. Supplementation may resolve this. • Iron deficiency: Linked to anemia,
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Pica is a common but concerning behavior in kids with autism, involving the persistent eating or chewing of non-food items like dirt, paper, hair, or even feces. While it might seem like just a phase, pica can lead to serious health risks such as bowel obstructions, toxicity, and infections. So why does pica happen? Here are some possible root causes: • Zinc deficiency: Over 50% of individuals with pica have low zinc levels. Supplementation may resolve this. • Iron deficiency: Linked to anemia,
92.4K viewsFeb 5, 2025
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🚨 Robert F. Kennedy Jr. announces “folate deficiency in a child’s brain can lead to autism.” | MAHA Action
221.2K views7 months ago
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A Hope for Autism: Could Leucovorin Make a Difference? 🌟 Leucovorin (also called folinic acid) is a form of vitamin B9 that doctors have used for years to support folate metabolism in the body. Recently it’s being studied as an adjunct therapy for some children on the autism spectrum — especially those with cerebral folate deficiency, a condition where folate doesn’t reach the brain properly. Small studies have shown that, when used under medical supervision, leucovorin may improve language, so
315.5K views7 months ago
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🧠 Could a simple vitamin be the missing piece in your child’s autism treatment plan? In this powerful episode, I interview Dr. Richard Frye, Harvard-trained pediatric neurologist and leading autism researcher, about leucovorin (folinic acid)—a prescription that may help children with autism talk more, sleep better, and reduce problem behaviors. ✔️ Up to 75% of kids with autism may have folate transport issues ✔️ A simple FRAT blood test can help identify it ✔️ And many kids who receive leucovor
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Education saves time, money, and skills. 💙 Cerebral Folate Deficiency (CFD) is not autism — but it can coexist with autism, and it is treatable. Autism isn’t cured, but when CFD is identified and treated, some children may gain skills with folinic acid (leucovorin). Knowing what tests to ask for matters. Ask questions. Advocate. Rule things out so your child can get the right support. ♾️ #AutismSupportChat #CerebralFolateDeficiency #AutismEducation #ParentAdvocacy #Leucovorin
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Links to Dr Frye’s research on autism, leucovorin, and cerebral folate deficiency. #autismawareness #neurodivergent #severeautism #autism #autismmom
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