if anyone knows more about Wolfram syndrome let us know we would love to know more about it 🥺 #type1diabetes #wolframsyndrome #chronicillness | Jayla T1D
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if anyone knows more about Wolfram syndrome let us know w…
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“When I was diagnosed with Wolfram Syndrome, I felt alone. No one around me had even heard of it. But over the years, I’ve seen our community grow — more people getting answers, more families finding support, and more hope on the horizon.” 💙 Every diagnosis story matters. The earlier we detect Wolfram Syndrome, the sooner we can treat it, study it, and fight for a cure. 🎗️ Join us in spreading awareness this Giving Season. (Link in Bio) #WolframSyndrome #RareDisease #TheSnowFoundation #GivingT
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“When I was diagnosed with Wolfram Syndrome, I felt alone. N…
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FacebookThe Snow Foundation
Early and accurate diagnosis saves lives. “When I was a resident, Wolfram Syndrome was one line in a textbook. Now, it’s in journals, conferences, and conversations — thanks to awareness efforts like this.” 💙 Awareness leads to recognition. Recognition leads to diagnosis. Diagnosis leads to treatment. And treatment leads to hope. 📢 Help us keep spreading the word this Giving Season. #TheSnowFoundation #EarlyDiagnosis #WolframSyndrome #RareDisease #GivingTuesday | The Snow Foundation
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Early and accurate diagnosis saves lives. “When I was a resident, Wolf…
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When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome
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Day 3 of 7 for Jennifer's "Walk a Week for Wolfram" challenge. Today Jennifer managed to almost complete the first minute standing up and being supported by her walker frame, myself and her carer on each side. This was a big achievement for her as it uses a lot of her strength to do this. As everyone is being so generous with supporting her she wanted to give that little bit more herself to the challenge. Apologies about any weird angles but I was helping to support her as well 😀 Thank you to e
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Day 3 of 7 for Jennifer's "Walk a Week for Wolfram" challenge. Tod…
593 views6 months ago
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Honoring those in the fight against Wolfram syndrome! Wolfram Syndrome Global Awareness Day | The Snow Foundation
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Honoring those in the fight against Wolfram syndrome! Wolfram Synd…
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